Sunday, June 29, 2008

JuJu the Ballerina


JuJu had her first ballet recital. Grandmas' Margie and Karen and Papa Felix were here. She was so cute, and she danced fabulous!!!!!!! Isn't she beautiful! Decades of Dance was the theme this year. The dance they did was to Doggie in the Window. She definitely inherited the athletic gene from J! We all know I can't do anything remotely athletic! She was disappointed when we told her ballet is off in the summer like school and wouldn't start up again until September. I guess next year we will have to sign her up for summer camp!

Saturday, June 21, 2008

Another Dead End

C-man had his appointment with the nutritionist this week. Basically the only good thing we got out of it was that we now know he isn't eating NEARLY enough (Duh) He is eating about 800 calories a day, but with him being below the charts with weight and in the 10-25% for his height he NEEDS to be eating 1200-1400 calories!!!!!!!
Please tell me how to MAKE my child eat! I have yet to figure this technique out with all 3 of my kids! He THROWS his food in the floor! He has however, discovered dipping! He LOVES to dip! So I give him GF ketsup and GF/DF ranch (don't ask!) He happily sits and dips, but he only eats maybe half of what he dips! Mainly he uses the food to suck the dip off!
She told us, that she felt really bad that she wasn't more help, but everything that she would recommend I was already doing (yeah me!, score 2 pts for mama!)
Short of the fact he needs to eat more, she had no recommendations! Basically I need to figure out how to get high calories foods into the items he DOES like to eat. Ideas?? Email me!
She did give us the "If you we don't see an improvement, worse case scenario" talk. Totally freaked me out of course! She said that if he didn't at least get ON the chart that the Dr could decide that he would need a feeding tube at night! WHAT!!!!!!!!!!!!!!!!!!!!!!!!!! So pray that we can figure out foods that are safe, and don't give him the poops, that he will discover a fondness for eating high calorie foods, and that it NEVER comes to that! I don't think that is something I could handle. Praying good doesn't think so either!
Hugs....

Thursday, June 19, 2008

Happy Birthday JuJu!


JuJu turned 4!!!! Wow time flies! Here is a picture of her and her buddies at her party last week. She had a barbie party, we gave them makeovers and they dressed up it was really fun!

Monday, June 9, 2008

EXTREMELY Frustrated...

Sit back, grab a soft drink, because this is a long vent!!!!
I think that C-man's Doctor appointment was the biggest waste of money I have ever spent! Okay let me back up. We get there, C-man has had a HUGE nasty stinky blow out, I mean the WHOLE place reeks! We are taken right back so I can clean him up, change his clothes. Doctor comes in says something along the lines of "oh someone has a tummy ache." (DUH) Ask how he has been feeling (DUH again) I told him about last weeks visit to the Dr and his fever and crazy hives. Told him that Dr said nothing seemed to be wrong and it was probably viral. He immediately chalks the diarrhea up to the virus!!!!!!!!!!!!! I am not saying that it COULDN'T be it, Benny had dirrhea with his fever, BUT C-man didn't get the diarrhea until 2days AFTER the fever and hives. He said EVERYTHING came back normal or negative. He did go to his sister's bday party were I TRIED to be very dilligent, but I was hosting and it was hard to do! So who knows what he could have ate! Anything is possible. I mentioned that it was likely he got into something. The man didn't even know C-man had food allergies! WHAT!!! His regular Doctor was supposed to fax all that, supposedly they didn't receive anything. Nor did they get the original blood work! So they had nothing to compare it to. Last time we were there they asked me to keep a food journal, so they could be sure he was eating enough calories. The first thing he says is "Is there a reason his main food is almond milk?" Seriously I wanted to punch him! HELLO!!!! The kid is 19mo and picky AND can't eat anything! It is why we were there! Then he says, "well he grew 5cm since the last time he was here, and he hasn't lost any weight so I am concerned but think he will be fine!" GRRRRRR.....I can see Jeff's thought process in this period of time too. NOT GOOD.
The Dr can tell I am getting irrated. I ask him what was the pediatrician's reasoning to send us to him then if nothing was wrong? And why did the Doctor seem to think that his Celiac panel was borderline? He says, "oh he has been tested before?" At this point I am ready to blow up! YES!!!!!!!! So he says he needs me to (again) fax the info to him, so he can compare and review, and he wanted to know why we didn't have the sweat test taken! OHMYGOSH! HELLO! I told him what HE said, about not having it done when Connor is sick and has fever and hives. He says okay well did you reschedule it? I reminded him that the first one took almost 4 wks to get into, and that I need to call again because no one had returned my call yet. He says okay have that done, and come back in 2 wks. Did he not HEAR ME! 4wks for the first apt! Then he says okay here is a # to another hospital that MAY do small children. Call them, question, why can't his office staff do this for me???? Then he proceeds to tell us that if that turns out fine and he doesn't seem to be "improving" then he will need to do the endoscopy ASAP. GREAT, so now I opened my big mouth so much that they want to do the procedure I was hoping to avoid! I just can't seem to get the dr thing right! TOTALLY frustrated. Oh, and the Dr was irritated with me for having C-man on a GF diet "without proof" of a medically necessary condition. He said that it frustrates him when reg Dr do this because then it screws up there test results. Which I CAN understand, BUT I am sorry what do they want me to do, let my baby starve to death? Am I supposed to keep watching him have severe diarrhea and vomitting, excema, distended belly and screaming uncontrolably in the night? So we wait again...

Thursday, June 5, 2008

Totally bummed...

C-man was supposed to have his sweat test today at Phoenix Children's Hospital BUT he is sick! He started running a fever of 103 yesterday broke out in hives on his face, arms and legs. Poor little guy kept saying "ouch!" So they cancelled his test. Totally frustrated because it was a month wait for this appointment. So we have to wait again! He is still going in for the follow up on Monday though in order to get the results of the test he already had completed. I don't think I could stand waiting any longer!

Tuesday, June 3, 2008

Happy Birthday Boo!

Boo turned one! I got to cute his hair! The kids got the "pleasure" of trying one of my experimental cakes that is Gluten Free. They all loved it! The birthday boy was more interested in his ice cream! I can't believe that the babies are one now! Time flys...

The love of my life and I.

The love of my life and I.