Still waiting...

C-man was supposed to go in to see the GI specialist again this Tuesday but the Doctor hasn't got all his testing back. Also, the Children's Hospital still hasn't had any cancellations to get him in before the 5th of June. So it looks like we have another week or two. I rescheduled his follow-up with the GI for the 9th of June. So we SHOULD have all test results that were ordered back in. Let me tell you that getting the "samples" as I will nicely call them was NEAR impossible! Have you ever tried to hold a baby over a paint style can to do his "deed"? Or tried to figure out when he was going or just being aromatic? LOL! Talk about GAG city! UGH! I PRAY I never have to do THAT again! GI said the lab would have to just get what they could! Hopefully it is enough.
As for me, I spent one day at ER this week, and today at UC. No clue what is going on, I am a mass of symptoms for both my thyroid/adrinal gland(s) and my gallbladder. From Thursday until today from my ears/chin down to my waist front and back and on my arms I have been covered in hives. I had to have a prednisone shot in the behind OUCH!!!!!!!
I have a follow-up with a internal medicine specialist/family practice Dr. Tues at 2:30p and then next week on the 2nd I see a Endocrinologist, FINALLY!!!!!!!! I know the stress of C-man being sick and wrapping up a school year with Mouse have added a lot. So we have been getting rid of all the extra commitments. Which means, no more homeschool park day for a while, no more preschool swap hosting for me, though my friends have graciously said JuJu could still come to their homes. Baseball is finished for Mouse so no more 2-3 days a week commitment there, cancelled plans for swim lessons, C-man is the only one who doesn't know how to swim, but since we don't own a pool it isn't crucial until next year, IMO. Ballet will be finished for the summer in a little over 4 wks. So please keep us in your thoughts and prayers!
Oh and we are NOT getting a new puppy until early July. That is when the liter will be old enough, by then HOPEFULLY our life will on some sort of better track by then!
HUGS!!!!!

C-Man update

Hi all,

First thank you for your prayers and well wishes in the last week or so. C-Man was seen at the Pediatric Gastroenterology appointment today. Appointment basically was a run through of symptoms, check list of what kind of test he has had in his little life, and what he felt we needed to have him tested for at this point. He didn't have blood in his stool today at his appointment, which is definitely a plus! He also checked his ears after finding out today was his last day of antibiotics, which were looking beautiful he said! He did worry me a little when he said that two of his lymph nodes in his neck were enlarged, and he proceeded to check him under his arms and in his groin. He didn't say anything after checking there so I don't know if that was good or bad. This week we are off to the hospital for stool samples, tons of blood work and a sweat test. He said it wasn't likely that he has Cystic Fibrosis, but some of his symptoms match and he has to rule it out first. He did mention a endoscope and biopsy of his intestines. But will not do that until he gets the test results back in two weeks. PLEASE keep praying for peace, answers, healing and knowledge from God. C-Man to make matters worse has decided to become picky!!!! He isn't drinking almond milk I am TRYING at this point to get him to drink soy, which I don't like giving him. But he needs SOMETHING! He also is throwing his food, and tells us "NO NO NO!" I just don't know what to do.
Love and Miss everyone....

Pretty Mom's "story"

Beautiful..... A baby asked God, 'They tell me you are sending me to earth tomorrow, buthow am I going to live there being so small and helpless?' God said,'Your angel will be waiting for you and will take care of you.' Thechild further inquired, 'But tell me, here in heaven I don't have to doanything but sing and smile to be happy.' God said, 'Your angel willsing for you and will also smile for you. And you will feel yourangel's love and be very happy.' Again the child asked, 'Andhow am I going to be able to understand when people talk to me if Idon't know the language?' God said, 'Your angel will tell you the mostbeautiful and sweet words you will ever hear, and with much patienceand care, your angel will teach you how to speak.' 'And w hat am Igoing to do when I want to talk to you?' God said, 'Your angel will place your hands together and will teach you how to pray.' 'Who will protect me?' God said, 'Your angel will defend you even if it means risking its life.' 'ButI will always be sad because I will not see you anymore.' God said,'Your angel will always talk to you about Me and will teach you the wayto come back to Me, even though I will always be next to you.' Atthat moment there was much peace in Heaven, but voices from Earth couldbe heard and the child hurriedly asked, 'God, if I am to leave now,please tell me my angel's name.' God said, 'You will simply call her, 'Mom.' Lifta mother's spirit, send this to every mother you know. (no matter howold her child is), and to every child who loves their mother.?? HappyMother's Day to all you "Moms"!

Dr apt

C-man has his appointment with the GI specialist on Monday May 12, if you could please keep him in your prayer we would appreciate it! He hasn't been eating well this week. Refusing to drink any Almond Milk or Soy Milk. Will only drink water or watered down apple juice. He basically eats breakfast and snacks the rest of the day. Dreading his weigh in! He is so darn happy though! He makes me smile and laugh all day. Really hard to disappline the "baby". He is just so darn cute when he throws fits! YIKES!!!

C-Man Update...

We got the first set of results for C-man's test today. So far everything is coming back great. His white blood cell count is normal, his thyroid is normal, the 1st blood work regarding the Celiac's Disease came back JUST barely in the normal/high range. So he said the GI will do other test that are for Celiac's Disease. Normal at his age is 20-100 his was 98. So JUST in the normal range. He said it doesn't rule it out because we have been TRYING to avoid anything that would cause huge flare ups. I should here from Phoenix Children's Hospital tomorrow with an apt date and time. Most likely in the next week. Will keep everyone posted, please keep up the prayers!!! God is SO good!

Hugs!!!

Pray Please...

Dear Friends and Family,

Today was a trying day for me. As most of you know C-man has been suffering from food allergies and intolerance. He had his 18mo check up today and it was very discouraging. 3 weeks ago I took him to a new Doctor, a regular pediatrician (our insurance will not cover naturopathic medicine anymore!) He was sick running a high fever....again....for an ear infection. She gave me antibiotic ear drops and he seemed to be doing better, at that day and time, he weighed 21lbs. Now you all now I have skinny little kids but she was worried and wrote up a referral for him to see a nutritionist. We can't get into her office until the end of June! Well today when I took him in his ear was worse, he was given antibiotics, which at this point I feel led to give him because the supplements I have been giving him have not worked in the past 3 weeks. But the alarming thing is my baby, who was not on the chart for his weight 3 weeks ago, has lost 2 lbs! He now weighs 19.9lbs. I am beside myself with worry and his Doctor is very concerned.
We spent the morning at the lab he is having a CBC count done, they are testing his thyroid, and he is being screened for celiac's disease. The Pediatrician is trying to get him into Phoenix Children's Hospital as soon as possible to see a Gastrontologist(sp), to have him screened for both Chrone's (sp?) and Colitis Disease. He is also be checked for mal-absorption.
PLEASE, whatever you believe, PLEASE, pray! Pray that the LORD will fill the Doctor's with the knowledge to figure out what is wrong with him, please pray that he does not lose anymore weight, pray for my family as we try to work our way through this time in our life. I pray that God, in whatever he has planned, will fill me with peace and pray that C-man will have healing. I pray that we will not have to have an endoscope done, but if we do that the LORD will bring him through it safely.

Hugs to you all and know you are in my prayers also!