Monday, June 9, 2008

EXTREMELY Frustrated...

Sit back, grab a soft drink, because this is a long vent!!!!
I think that C-man's Doctor appointment was the biggest waste of money I have ever spent! Okay let me back up. We get there, C-man has had a HUGE nasty stinky blow out, I mean the WHOLE place reeks! We are taken right back so I can clean him up, change his clothes. Doctor comes in says something along the lines of "oh someone has a tummy ache." (DUH) Ask how he has been feeling (DUH again) I told him about last weeks visit to the Dr and his fever and crazy hives. Told him that Dr said nothing seemed to be wrong and it was probably viral. He immediately chalks the diarrhea up to the virus!!!!!!!!!!!!! I am not saying that it COULDN'T be it, Benny had dirrhea with his fever, BUT C-man didn't get the diarrhea until 2days AFTER the fever and hives. He said EVERYTHING came back normal or negative. He did go to his sister's bday party were I TRIED to be very dilligent, but I was hosting and it was hard to do! So who knows what he could have ate! Anything is possible. I mentioned that it was likely he got into something. The man didn't even know C-man had food allergies! WHAT!!! His regular Doctor was supposed to fax all that, supposedly they didn't receive anything. Nor did they get the original blood work! So they had nothing to compare it to. Last time we were there they asked me to keep a food journal, so they could be sure he was eating enough calories. The first thing he says is "Is there a reason his main food is almond milk?" Seriously I wanted to punch him! HELLO!!!! The kid is 19mo and picky AND can't eat anything! It is why we were there! Then he says, "well he grew 5cm since the last time he was here, and he hasn't lost any weight so I am concerned but think he will be fine!" GRRRRRR.....I can see Jeff's thought process in this period of time too. NOT GOOD.
The Dr can tell I am getting irrated. I ask him what was the pediatrician's reasoning to send us to him then if nothing was wrong? And why did the Doctor seem to think that his Celiac panel was borderline? He says, "oh he has been tested before?" At this point I am ready to blow up! YES!!!!!!!! So he says he needs me to (again) fax the info to him, so he can compare and review, and he wanted to know why we didn't have the sweat test taken! OHMYGOSH! HELLO! I told him what HE said, about not having it done when Connor is sick and has fever and hives. He says okay well did you reschedule it? I reminded him that the first one took almost 4 wks to get into, and that I need to call again because no one had returned my call yet. He says okay have that done, and come back in 2 wks. Did he not HEAR ME! 4wks for the first apt! Then he says okay here is a # to another hospital that MAY do small children. Call them, question, why can't his office staff do this for me???? Then he proceeds to tell us that if that turns out fine and he doesn't seem to be "improving" then he will need to do the endoscopy ASAP. GREAT, so now I opened my big mouth so much that they want to do the procedure I was hoping to avoid! I just can't seem to get the dr thing right! TOTALLY frustrated. Oh, and the Dr was irritated with me for having C-man on a GF diet "without proof" of a medically necessary condition. He said that it frustrates him when reg Dr do this because then it screws up there test results. Which I CAN understand, BUT I am sorry what do they want me to do, let my baby starve to death? Am I supposed to keep watching him have severe diarrhea and vomitting, excema, distended belly and screaming uncontrolably in the night? So we wait again...

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The love of my life and I.

The love of my life and I.